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PSD LIFESTYLE
A Survey of Mental Health Patients Utilizing Psychiatric Service Dogs By Joan Esnayra Ph.D. & Craig Love, Ph.D. ABSTRACT This paper explores an innovative management strategy for refractory mental health symptoms among dog-loving patients. The study’s purpose is to generate knowledge about how Psychiatric Service Dogs are being utilized by patients and to generate hypotheses about the types of patients who may benefit from Psychiatric Service Dog partnership in the future. Ours is a descriptive study based upon a voluntary paper survey. The volunteer sample was recruited via email. The singular eligibility criterion is membership on one or more Psychiatric Service Dog listservs. Ninety-five individuals volunteered to participate in the survey. Seventy-one completed surveys were returned. 84.4% (n=54) of respondents report that their psychiatric symptoms have diminished subsequent to canine partnership, and 40.0% (n=26) of respondents report that their use of psychotropic medication has decreased. Interestingly, survey data that characterize the cohort are concordant with independently proposed metrics for assessing the likelihood of Psychiatric Service Dog partnership success. Keywords: service dog; mental health; psychiatric; survey INTRODUCTION Animal Assisted Therapy (AAT) is routinely provided in a variety of medical settings, including inpatient psychiatric wards and therapists’ offices (Granger et al., 2000). Research demonstrates its efficacy at helping withdrawn children speak (Law and Scott, 1995; Levinson, 1964), nursing home residents socialize (Fick, 1993; Winkler et al., 1989), and anxious patients relax (Barker and Dawson, 1998). A drawback of AAT is when the session ends. Dog and patient go their separate ways. Indeed it has been proposed that the beneficial effects of AAT are not sustained after the session is over (Beck and Katcher, 1984). What would happen if this form of therapy was allowed to continue? What would happen if dog and patient could be together every minute of every day? Corson, et al, proffered as much when, in 1975, they wrote, “...it may be worthwhile to consider the feasibility of arrangements in which the patient could be provided with a dog,…to take home to provide a continuing stabilizing therapeutic environment in the patient’s home. The…dogs could thus serve a function comparable to that of a ‘seeing eye’ dog; [these] dogs would be ‘feeling heart’ dogs” (Corson et al., 1975, p. 281). The Psychiatric Service Dog (PSD) is today’s analogue to Corson’s ‘feeling heart’ dog. By law, Service Dogs are “…individually trained to do work or perform tasks for the benefit of an individual with a disability…”1 Psychiatric Service Dogs are being utilized by patients as adjuncts to standard of care psychiatric treatments. The dogs are trained to assist in the management of refractory mental health symptoms through the performance of disability-related tasks and/or by providing a therapeutic function (i.e., doing work). One example of a therapeutic function is getting a person with Agoraphobia outside of the home on a regular basis. Table 1 lists a repertoire of Psychiatric Service Dog tasks. By law, Service Dogs must be permitted to enter places of public accommodation such as, doctor’s offices, hospitals, restaurants, retail stores, public transportation, etc.2 There is no accurate census of how many Psychiatric Service Dog teams are on the streets today, but a reasonable approximation is 5,000-10,000.3 The popularity of this therapeutic adjunct has recently extended to other countries.4
In order to generate hypotheses about Psychiatric Service Dog utilization practices and to identify key characteristics of individuals who may likely benefit from such a partnership, the Psychiatric Service Dog Society conducted a scientific survey of individuals who are currently using these dogs successfully. Survey data characterize the cohort in a manner that is consistent with proposed metrics for assessing the likelihood of psychiatric service dog partnership success. These metrics provide a hypothetical basis for further research. Clinicians may wish to recommend a Psychiatric Service Dog to select patients in light of these findings. METHODS Sample: There was no intention on our part to generate a representative sample. Since this is a web-based survey, and the total number of internet users cannot be calculated, we cannot therefore calculate a response rate when the denominator, itself, is unknowable. Furthermore, the target population is also unknown. Thus, the results of the survey cannot be generalized beyond the responders themselves. We did not establish main outcome measures prior to data collection, because the purpose of the study is descriptive and hypothesis-generating. A volunteer sample was recruited via email to participate in the survey by virtue of their membership in one or more Psychiatric Service Dog listservs. Those who wished to participate in the study were directed to a secure website where they were asked to register their contact information so that a survey could be mailed to them. ‘Eligible respondents’ are defined as any person who provided contact information via this mechanism. The contact rate (CON1) = 1 (AAPOR, 2006). Six potential respondents contacted PSDS staff to discuss their concerns about completing the questionnaire. Those who were concerned about potential triggers among the questions or those who were concerned about the confidentiality of the survey were apprised of their right not to participate. Ninety-five survey forms were distributed. Responders are defined as those individuals who returned a completed or partially-completed survey. (All returned surveys were in fact completed). There were 71 responders. A non-responder is defined as any individual who requested, but did not return a survey. There were 24 non-responders. The cooperation rate (COOP1) = 74.74%. The refusal rate (REF1) = 25.26%. As a group, non-responders cannot be characterized. Although, two non-responders did contact PSDS via telephone reporting that they could not complete the survey, because some of the questions on it were too psychologically triggering for them. Each was told that they did not have to complete the survey, if they did not wish to. Instrument: The survey is a 118 item paper and pencil instrument with multiple response formats. While the majority of the responses use a Likert format (i.e., instructions to circle the best-fit answer(s), several items also offered the option of indicating “Other” with space allotted for open-ended responses. Response rates vary across items depending on the occurrence of skip patterns. Items were presented in spacious format with the questions distributed over seventeen pages with ample white space and separation among answer options to minimize confusion. Most of the questions addressed information about the respondents, their dogs, or their mental health. The question domains included:
Only seven questions required respondents to provide opinions or make judgments. Two questions asked about doctors’ and therapists’ support for the Psychiatric Service Dog. Two questions asked about families and friends’ acceptance of the Psychiatric Service Dog. One question asked respondents to judge whether disability-related tasks or therapeutic functions (non-tasks), or both, are most important to the respondent. Finally, two questions serve as outcomes indicators and asked whether use of a Psychiatric Service Dog results in a reduction in refractory psychiatric symptoms and/or medication usage. Procedure: The human subjects procedures followed in this study were in accordance with the ethical standards of the responsible committee on human experimentation and with the Helsinki Declaration of 1975, as revised in 2000. The Westat Institutional Review Board (IRB) is a certified human subjects protection agency that requires documentation on every aspect of a study pertinent to human subjects participation. IRB approval in this context assures that all required features of the consent form and the protocol meet legal requirements. That said, written materials including the proposed survey were submitted to the IRB, by the research team, and were approved with minor changes. After IRB approval was obtained, a solicitation for participation in the survey was emailed to all members of the PSDS listserv with permission to cross-post to other Psychiatric Service Dog listservs. The message included a statement about the importance of conducting research on Psychiatric Service Dogs, in order to develop a better understanding of how dogs are being utilized to manage refractory symptoms. Those interested in participating in the study were instructed to click on an embedded hyperlink that connected to a secure portion of the PSDS website in order to enroll in the study. Potential respondents were asked to provide their name, mailing address, and email address. Those who enrolled were sent the following documents: 1) a number-coded questionnaire on white paper; 2) instructions on how to complete the questionnaire and return printed materials; 3) a white self-addressed stamped envelope destined for Westat; 4) a same-number-coded consent form on pink paper; 5) a pink self-addressed stamped envelope destined for PSDS. Respondents were instructed to complete the white survey form and send it to Westat in the enclosed postage paid white envelope. They were also instructed to read and sign the pink consent form and send it to PSDS in the enclosed postage paid pink envelope. Respondents were given three weeks to return the questionnaire. The survey form had no individual identifiers and respondents were instructed not to identify themselves on the questionnaire. In no instance were the list of names and coded survey numbers matched. A research assistant at Westat provided PSDS staff the code numbers on all returned questionnaires. PSDS subsequently sent individuals who successfully completed the questionnaire a $10.00 incentive. It is noteworthy that twenty-four of seventy-one respondents spontaneously refused the incentive asking instead that the money be donated to PSDS. Refusing the stipend was not offered as an option or in any way suggested to respondents. Statistical Analyses: Because the sample was not randomly selected, it is not appropriate to use inferential statistics. Rather, the study focused on description and correlations. The resulting findings are to be the basis of further research. Similarly, since the study has engaged a potentially select sample, no attempts at weighting were made. RESULTS Demographics: Survey respondents’ ages range from 20 years to 69 years. 88.7% (n= 63) of respondents are female. 95.8% (n= 68) of respondents are Caucasian. The cohort lives in 28 states with equal representation from rural, suburban, and metropolitan areas. All completed high school, and 87.3% (n= 62) has some college-level education. All respondents have internet access. 69.2% (n=45) of respondents are unemployed, and 60.6% (n=43) receive some form of public assistance. 42.3% (n=30) receive Social Security Disability Income. 45.7% (n=32) of respondents earn less than $25,000 per year. 52.9% (n=37) of respondents rent their dwelling compared to the national housing rental average of 33.8%.7 All respondents grew up in families that had pets. For 89.9% (n =62) of respondents this included at least one dog. All report having owned animals as an adult. 76.6% (n=49) of respondents report some prior dog training experience. The cohort’s current status with regard to Psychiatric Service Dog partnership is shown in Table 2.
TABLE 6: Effects of Psychiatric Service Dog Partnership on Respondents’ Self-Reported Mental Health Symptoms Manifestation and Medication Usage by Diagnosis (in Rank Order)
The Dog: Dog ownership brings with it many responsibilities. Some have questioned the abilities of psychiatric patients to adequately care for a dog. 95.4% (n=62) of respondents report that their dog currently has a veterinarian. 98.5% (n=64) of respondents report their dog is current on all its vaccinations. 78.9% (n=49) of respondents report that their dog needs on average two or more veterinary visits per year. To this end, 84.3% (n=59) report that a car is available to them when needed. 90.8% (n=59) of respondents report walking their dog on a regular basis. 78.5% (n=51) of respondents play with their dog regularly. In terms of training, the cohort is very much hands-on. 89.2% (n=58) of respondents report active involvement in the training of their Service Dog. 50.8% (n=30) of respondents report training their Service Dog primarily by themselves. 35.6% (n=21) report training primarily under the guidance of a professional dog trainer. A Psychiatric Service Dog is trained to meet the individual needs of a given patient. 81.3% (n=52) of respondents report that their dog is trained to perform disability-related tasks, while 18.8% (n=12) report their dog is not task trained. An open-ended survey item asks respondents to describe the ‘non-task’ forms of assistance provided by their Service Dog, and these data are presented in Table 7. When asked about the relative importance of task versus ‘non-task’ forms of assistance, 4.6% (n=3) of respondents report that the performance of disability-related tasks is most important. 30.8% (n=20) of respondents indicate that ‘non-task’ forms of assistance are most important, and 61.5% (n=40) of respondents report that, both, tasks and ‘non-task’ forms of assistance are equally important. TABLE 7: Survey Open-Ended Responses Listing Psychiatric Service Dogs Therapeutic Functions (i.e., ‘non-task’ Forms of Assistance)
The amount of time that a patient spends with his/her Psychiatric Service Dog is believed to impact the efficacy of the partnership. 78.5% (n=51) of respondents report that their dog is with them at least 90% of the time. This leads to access challenges in places of public accommodation (i.e., retail stores, restaurants, grocery stores, public transportation). Relationships with family and friends may also be affected by the partnership. Some friends and family are supportive of patients who choose this disability management strategy, while some are not. Table 8 features some of the stresses and supports that are associated with Psychiatric Service Dog partnership. TABLE 8: Sources of Support and Stress for Patients Using Psychiatric Service Dogs
DISCUSSION: The survey cohort is neither representative of the U.S. population, nor psychiatric patients, in general. They are a selected group of individuals who are using Psychiatric Service Dogs successfully and are connected to one another by virtue of their participation in one or more Service Dog listservs. Independently and prior to conducting this study, the authors generated a list of proposed metrics for assessing the likelihood of Psychiatric Service Dog partnership success in the hopes that the metrics could be utilized by clinicians when deciding whether to recommend a Psychiatric Service Dog to a patient. In the course of analyzing the survey data, it became apparent that the survey cohort reflected many of the metrics previously identified. Table 9 lists the metrics, and their nexus to the survey cohort is elaborated below. Functionally, Table 9 serves as a launching point from which testable hypotheses may be drawn and subsequently tested in the context of a longitudinal outcomes study.
Both authors thank Westat for personnel, data handling, and Institutional Review Board support. We thank Abena Brown, Ph.D., former employee of Westat for survey mail-out and data entry. We thank Mr. Bill Balaban for funding the Psychiatric Service Dog Society portion of the study that included respondent incentives and webmaster support. Mr. Balaban had no involvement in the study design; data collection, data analyses, data interpretation or writing of the report. Finally, this paper honors the first Psychiatric Service Dog ‘Wasabe’ who showed us the way. FOOTNOTES: 1 28 CFR 36.104; Available at: http://www.gpoaccess.gov/cfr/index.html Accessed May 26, 2007. 2 Commonly Asked Questions About Service Animals In Places of Business, memo, Department of Justice. Available at: http://www.usdoj.gov/crt/ada/svcanimb.htm Accessed June 1, 2007. 3 This rough figure is based upon the approximately 5,000 persons who have been served by the Psychiatric Service Dog Society listserv over the past ten years. 4 The first Psychiatric Service Dog organization in Australia was founded in 2003. The organization is known as A.W.A.R.E. Dogs Available at: http://www.awaredogs.org.au Accessed June 21, 2007. In addition, the Austrian government has appointed an individual named Ms. Gloria Petrovics who is charged with developing Service Animal regulations for the country. She reports that Psychiatric Service Dogs will be recognized by the Austrian government and provided with public access rights equivalent to those extended to Guide Dogs (pers comm). In England, Psychiatric Service Dog advocates are mobilizing to achieve recognition and acceptance for Psychiatric Service Dogs by the governments of the UK. 5 Unpublished data collected by authors over ten years in the context of a Psychiatric Service Dog listserv. 6 Ibid. 7 Housing Characteristics: 2000, Census 2000 Brief, U.S. Census Bureau, Available at: http://www.census.gov/population/www/cen2000/briefs.html Accessed June 22, 2007. 8 Americans with Disabilities Act of 1990; definition of ‘person with a disability’ Available at: http://www.eeoc.gov/policy/ada.html Accessed June 26, 2007. REFERENCES: Allen K, Blascovich J (1996) The Value of Service Dogs for People with Severe Ambulatory Disabilities: a Randomized Controlled Trial. JAMA Apr 3;275(13):1001-6. AAPOR, American Association for Public Opinion Research (2006) Standard Definitions: Final Dispositions of Case Codes and Outcome Rates for Surveys, 4th edition, Lenexa, Kansas: AAPOR. Ascione F (1997) The abuse of animals and domestic violence: a national survey of shelters for women who are battered. Society and Animals 5(3):205–218. Barker SB, Dawson KS (1998) The Effects Of Animal-Assisted Therapy On Anxiety Ratings of Hospitalized Psychiatric Patients. Psychiatric Services June;49(6):797-801. Beck AM, Katcher A (1984) A New Look At Pet Facilitated Therapy. Journal of the American Veterinary Association 184:414-421. Chen M, Daly M, Williams N, Williams S, Williams C, Williams G, (2000) Non¬invasive Detection Of Hypoglycaemia Using A Novel, Fully Biocompatible and Patient Friendly Alarm System. British Medical Journal Dec 23-30;321(7276):1565-6. Church J, Williams H, (2001) Another Sniffer Dog for the Clinic? The Lancet Sep15;358(9285):930. Corson SA, Corson EO, Gwynne PH, Arnold LE (1975) Pet-Facilitated Psychotherapy in a Hospital Setting. In RS Anderson (Ed), Pet Animals and Society (p.281). London:Bailliere Tindall. Esnayra J (1998) Dogs at Work: Service Dogs for the Disabled. The Ridgeback Register 2(1):26-27. Fick KM (1993) The Influence of an Animal on Social Interactions of Nursing Home Residents. American Journal of Occupational Therapy 47(6):529-534. Granger BP, Kogan L (2000) Animal-Assisted Therapy in Specialized Settings. In A Fine (Ed), Animal Assisted Therapy: Theoretical Foundations and Guidelines for Practice (pp 220-224). San Diego: Academic Press. Hendrickson E (2005) Well-Heeled: Psychiatric Service Dogs are a lifeline to those with mental illnesses. AKC Family Dog May/June:44-45. Johnson A (2005) Guard Dogs of Mental Health. BARK Magazine Summer;31:41-42. Kirton A, Wirrell E, Zhang J, Hamiwka L (2004) Seizure-Alerting and Response Behaviors in Dogs Living with Epileptic Children. Neurology Jun 22;62(12):2303-5. Levinson BM (1964) Pets: A Special Technique In Child Psychotherapy. Mental Health Apr;48:243-248. Law S, Scott S (1995) Tips For Practitioners: Pet Care: A Vehicle For Learning. Focus on Autistic Behavior 10(2):17-18. Mason MS, Hagan CB (1999) Pet-Assisted Psychotherapy. Psychological Reports Jun;84(3 Pt 2):1235-45. Smith MJ, Esnayra J, Love C (2003) Use of a Psychiatric Service Dog. Psychiatric Services Jan;54(1):110-1. Williams H, Pembroke A (1989) Sniffer Dogs In The Melanoma Clinic? Lancet 1:734. Winkler A, Fairnie H, Gericevich F, Long M (1989) The Impact Of A Resident Dog On An Institution For The Elderly: Effects On Perceptions And Social Interactions. The Gerontologist 29(2):216-223. Willis CM, Church SM, Guest CM, Cook WA, McCarthy N, Bransbury AJ, Church MR, Church JC (2004) Olfactory Detection Of Human Bladder Cancer By Dogs: Proof of Principle Study. British Medical Journal Sep 25;329(7468):712. Back to PSD Lifestyle
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